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http://www.hrsa.gov The United States Department of Health and Human
Services, Health Resources Service Administration.
This site can help you find whatever you are looking for if
it pertains to health care. It offers databases on everything
from free and low cost health clinics to state programs for
specialty populations.
The site provides active links and phone numbers for
hundreds of organizations and foundations.
This is a site for the person who is curious and not in
a hurry. You will need to be prepared to follow the leads
and enjoy the wealth of information available by following
the paths the links lead you down.
If you want to check on free or low cost medical
services in your area just go to their home page and click
on Primary Health Care. Just select your state, type in the
name of your city,(not all cities are listed) and select the
service or program you need and do a search.
This site also has publications, brochures ad other
information on many health and human services topics.
Debbie has been hurt for three year now. What I know in her case no one comes forward
with any information since the beginning. I have to ask about everything and they don’t tell
me any more than they have to. They even say I look two or three steps a head and that
does not make any one happy and some a little nerves. All I want is to make sure Debbie
has every opportunity for max recovery. I know instead of calling agency and getting the run
a round it would be better to go to a TBI support meeting and ask 10 year post survivor. A
special lady named Heather gave me the name and number of her case manager. CASE
MANGER this is the secret about services. Also Debbie and I went to the old rehab unit and
saw Project Star person and she gave me an agency name and number and who to ask for.
Put the two together and there is a starting point. If you ask a social worker at rehab if there
is any help out there to buy depends they will not at this time. But there is a way, I don’t know
yet but the case manager does.
So I called the agency and they sent me paper to sign to prove my power of attorney and a
release for Debbie medical records to see if she is hurt enough to need help. Then they sent
a letter to Dr. Hammond Debbie’s phyzirest(rehab doctor) and I got a copy of the Dr.
response. It said Debbie was in great need of a case manager. I waited and waited and after
6 months still no help. When I call the agency is waiting on medial records. When you are
talking about the rest of some one life 6 months is not long at all. Any one in this same
position make the calls in the first year so by the third year every thing flows smoothly.
Always ask a survivor that has been down this road before and be ready to wait. I asked my
Dr. of 18 years and he said first they probably need to she how much recovery some one is
going to make in the first two year to know if the person is still in need of help. Then also see
if the person dies in the first two years. And then most of all if the caregiver is able to handle
this responsibility or how the caregiver health is.
All I know is when you pass all the rules you will be assigned a case manager. I have already
call Heather case manager and he told me I am waiting on the right people just be patient.
The case manager can not help me until all the paper work is in place. I take care of Debbie
24/7 and Amber gives me a break often and thur rehab Debbie has home health no nurse
but PT, OT, Speech every week. As long as Debbie makes progress. So I am not sure what
a case manager would say but at least I would know Debbie is not missing out on any thing.
Still there is eastern medicine that no one us pay for but makes a difference in recovery.
This next link is the agency that does TBI in my state and we are waiting for.
www.dhhs.state.nc.us/mhddsas/tbi North Carolina Division of Mental Health,
Developmental Disabilities and Substance Abuse
Services (DMH/DD/SAS) oversees the states
public system of services to persons with
Traumatic Brain Injury.
North Carolina general statute includes
traumatic brain injury (TBI) in the definition of
developmental disability. A developmental
disability is defined as a severe, chronic disability
of a person which:
• Is caused by a mental or physical
impairment or a combination of mental
and physical impairments.
• Occurs before the person is 22 years of
age, unless the disability is caused by a
TBI and is sustained after the age of 22*
(*TBI services fall into this designation
regardless of the age of the individual at
the time of onset.)
• Is likely to continue indefinitely.
• Results in difficulties in three or more
areas of major life activities such as
self-carelanguage/communication,
living independently, learning, mobility
and working.
In North Carolina support is available for
eligible individuals of all ages with TBI.
The first step in determining eligibility for
services is to contact your Local Management
Entity (LME) referral and information line.
Intake coordinators will ask questions to, assess
needs and the urgency. They may also ask for
medical records which document the TBI. This
will help determine eligibility for services.
Once eligibility is determined those eligible
will be assisted with choosing a service provider
in there community who can provide services to
meet the needs of the person with TBI. This
provider will then work with the individual and
family members to determine a personalized
service plan.
Person Centered Planning explores what an
individuals needs are and ways to address these
needs. Some examples of services include in-
home support, residential services and assistance
with finding a job.
Services may vary in some areas due to the
limited services and service provider options
available.
To locate a area program see web or call
919-715-5989.
HELP IS AVAILABLE FOR FAMILIES AND INDIVIDUALS WITH
TRAUMATIC BRAIN INJURY:
CALL 1-800-444-6443
The Brain Injury Association of America (BIAA) in cooperation with the Centers for Disease
Control and Prevention (CDC) is pleased to announce a pilot study of a national, one-call
center at 1-800-444-6443 that provides individualized and confidential information and
resources for individuals with brain injury, family members, and caregivers.
This pilot study establishes a National Brain Injury Information Center. (NBIIC) that
automatically connects callers directly to the Information and Resources staff in three pilot
States: Michigan, Minnesota, and Mississippi. The Information and Resources staff provides
callers with brain injury information for quick linkages to the most appropriate local community
services. Callers to this number from other States will be connected to BIAA’s national office
to receive brain injury information, help, and resources.
This project is sponsored by Cooperative Agreement #U17/CCU323329 of the Brain Injury
Association of America and the Centers for Disease Control and Prevention. Visit BIAA’s Web
site for more information at http://www.biausa.org
The above information is a Resource Alert issued by The Brain Injury Association of America
on March 1, 2006
Listed below are some agencies and a brief overview of the type of services they provide.
Thank You Project Star for making this information available.
www.gacpd.com
Governors Advocacy Council for Persons with Disabilities (GACPD)
The GACPD protects and advocates for the rights of persons with disabilities, including
individuals with brain injuries and their families. GACPDs assistance may include providing
information, technical assistance with personal advocacy, direct advocacy on behalf of a
client and in some cases, legal representation if there is sufficient evidence to indicate that
the rights of a person with disability are being violated.
Contact 800-821-6922 for more information.
www.bianc.net
Brain Injury Association of North Carolina Support Group Network
Visit the website to locate the support group nearest you or call 1-800-377-1464
www.UnitedWay.com
United Way
United Way screens and refers eligible persons to programs on a local level throughout
the state. Regional offices provide comprehensive referral and information services. Some
United Way agencies offer free services to eligible individuals in the crisis situations. Call
919-834-5200 to locate the office nearest you.
www.dhhs.state.nc.us/DVR/IL/ilhome.htm
Vocational Rehabilitation Independent Living : (VRIL)
Helps eligible individuals with significant disabilities achieve greater independence in their
homes and communities. These services may include home or vehicle modifications,
personal assistance services, recreational therapy programs or
counseling. Call 919-855-3524 to locate the VRIL office that serves your country.
www.dhhs.state.nc.us/dvr/vrs/vrconsumer.htm
North Carolina Division of Vocational Rehabilitation:
Vocational Rehabilitation (VR) assist individuals with a disability prepare for and obtain
employment. Vocational testing, job coaching and a wide variety of other support services to
help individuals return to work are available to those who qualify.
Call 919-855-3500 to locate the office nearest you.
www.ssa.gov
North Carolina Social Security Administration
With offices around the state, the Social Security Administration can process applications for
Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) and answer
questions. The Social Security Administration administers
Federal and state benefit programs. To locate the office nearest you
Call 800-772-1213
www.dhhs.state.nc.us/dss/local/index.htm
Department of Social Services:
Each county in North Carolina has a Department of Social Services which offers services to
eligible individuals. Some of the services that may be available to those who qualify include
case management, assistance for Medicaid eligibility, housing and other government
assistance programs. To locate the Social Services office in your county call
919-733-3055