06February

February 28, 2006
Debbie is doing new or different things all the time. This is what I typed last night just
before I went to sleep and how I wanted to start the 2/28/06. We don’t always get what
we want. I am no doctor but in ICU the doctor needs facts (chart work) to make
decisions.
This morning Debbie woke up as the sun came in the window about 6:45 am. Debbie
went all night with out using the bathroom which has only happened a few times in 3
years. Also Debbie didn’t need any suction all night. About4 am I cleaned the roof of
her mouth with a tooth brush. I laid with Debbie on her side until 8 am. This seemed to
relax Debbie. Amber took over at 8 am so I could get caught up on my sleep from this
last weekend. I know you can never catch up on sleep but I needed some time not to
be on the front line. Debbie looked ok at noon so I haven’t been out since Saturday so
I went for some lunch. The 2.5 hours I was gone PT came but Debbie was having a
saliva issue and increased tone in her legs so all Bryan could do was leg exercises.
More than that Amber and Bryan were talking to Debbie and she was able or trying to
communicate. Debbie let them know she was in pain but couldn’t say where. At least
Bryan could tell Debbie was more cognitive.
This is the issue now. People think you wake up from a coma and you are as you were
before or like getting up in the morning. This is not my experience with Debbie. I wish it
was that easy but as Debbie wakes up more and more comes pain and realizing the
lost of ability to control muscles, fear, uncertainty and what has happened to me
(Debbie). I may read too much into this but that is the body and emotional language I
see from 24/7.
Debbie was find on Saturday until 5 pm. Not following commands and calmer than
usual just putting in time in her wheelchair. Then @ 5 pm first started a saliva issued
that end with me turning Debbie on her left side patting her back praying for almost a
hour that she would cough to clear her air way. Sat-Tues I can’t count how many times
I have saved her life, more than 3 or 4 times a day. It has never been like this since
we have been home from rehab. It is more of a Nero issues than saliva. Most of the
time saliva is not the problem it is brain over load. When this occurs Debbie can turn
her head, stick out her tongue, reach out for me witch she has never done before.
Like just now 6 pm Tuesday night I am setting in the floor Debbie is in her bed with a
dry wash cloth over her eye to limit impute because she has been having a issue since
4pm. I am holding her right hand to help Debbie control the tremor and she pulled me
up because she wanted me to check her throat and it was ok just dry so I said it is ok
and kissed the back of her hand and Debbie pulled my hand to her mouth and kissed
the back of my hand and it looked like she said thank you. Debbie has never
expressed anything like this before. Back to Saturday night after I got Debbie’s air way
clear every thing was ok except Debbie didn’t go to sleep for two days. When Debbie
is extra on like this the tremors are worst and at times all you can do is hold Debbie
until it passes. Debbie is at that point of recovery, when is it time to reduce meds or at
what level is best for function and comfort. Dec. 6, 05 is when meds were reduced and
Debbie came back to life. This week is where you can tell where the injury has most
affected function. It is getting better but a lot of med adjustments.
Before I could finish this Debbie was normal and we took a shower before anything
else changed.
Back to this weekend Sunday and Monday night at 7:30 pm Debbie fell a sleep in my
arm lying on family room mat. This is new because I am not used to Debbie being
cognitive enough to get tired. You know what I mean. A day like today reminds me
how fragile life can be. Debbie is really with us tonight hopefully she can turn it off at
bed time.

February 27, 2006
Debbie woke up at 7 am when the sun came in the window as if the last two days had
been normal. That is one great thing about a head injury if one day is off there will
always be a fresh slate another day. The worst thing is if the next day does not
happen. Debbie, Amber, Krystal, and I try to make the most of the days we have. This
morning Debbie was not jumping which is always good. Amber spent the morning with
her and I got to sleep for three hours straight. When I got up it was time for the
occupational therapist, Susanne. Debbie, Susanne, Amber and I sat on the mat to
work on setting balance and Susanne also wanted Debbie to do another task at the
same time. This was the first time I have seen Debbie practice taking off and putting
on her shirt. When Debbie tried to put her shirt on like Susanne wanted it was
confusing to her. I said Susanne for three years a man has put Debbie’s shirt on and I
did not know there was a right or wrong way to put on a shirt. I always let Debbie put
her head in her shirt while I hold it open because I know Debbie can make this move. It
has to make Debbie feel like a winner to be able to help complete a task. Susanne
held open Debbie’s shirt and Debbie leaned forward as to put her shirt on. Susanne
appeared surprised. Debbie had a little trouble with her right arm but this always
depends on tone at that moment. The left arm I always put in sleeve.
Robin, the speech therapist came right after Susanne. This is a first time but it worked
out ok. We left Debbie alone with Robin to do therapy like always. When the session
was over Robin I came into the room. She told me that when I came in the room
Debbie looked at me and gave me a big smile, I said it is ok Debbie and turned to see
what Robin had to say. This all happened so fast. At the same time Debbie reached
and grabbed my hand. I could tell Robin noticed Debbie was expressing herself. And
at the same time Robin was saying this was the best session yet and she could not
wait to write her notes. Robin and Debbie have a special bond that took time Debbie
does not look away from Robin often. What is different with Bryan, Susanne, and
Robin is that they do not talk down to Debbie as if she was disabled. This does make
all the difference in the recovery.
When everyone was gone I laid Debbie on the mat on her left side. Debbie pulled the
blanket almost over her head like she used to. Debbie was not moving or jumping. I
held her neck and Debbie went to sleep for almost two hours. Yesterday was the first
time Debbie laid in this position and went to sleep. I learn more everyday.
Debbie got up for dinner, meds and we watched 50 first dates again. The whole two
hours Debbie’s right hand was jerking. (tremors) I laid Debbie back down on mat in
family room. Amber got home about 7 pm and worked with Debbie while I ate. Debbie
started having a bad saliva issue so I cut eating short and went back and rolled Debbie
over on her left side. When the saliva issue last too long this is the safest way to drain
her mouth. Today Krystal gave me a small mirror so I can see Debbie’s face and if her
right eye is up under eye lid. When we lay down Debbie’s back is to me her head
resting on my left arm so I can’t see Debbie’s face this mirror is great. Debbie went to
sleep for the second time today laying in my arms. When I heard Amber and Krystal
finish in the kitchen I said Amber come here but do not say anything . Looking in the
mirror I asked Debbie to look at me, she did. I asked if she was ready for bed and she
nodded yes. So no bath tonight again. It has been four day but health is more
important.
Sat and Sun Debbie was extra on but could sleep for two day.
Today still on but very very tired. Tomorrow is only a day away

February 26, 2006
Jerrall-
Debbie did not sleep at all last night. Krystal helped me get Debbie to bed at 1:30 am.
I had to hold onto Debbie while Krystal gave Debbie her meds and formula in bed. At
this point, Debbie has already had 2 extra diazepam, 2 extra tramadol, 1 extra
klonopin, plus her regular bed time meds. It was still like Debbie hadn’t not had any
meds at all. If Debbie was setting in her wheelchair calm, there would be no issue.
Instead, both of her legs and feet are having muscle spasms and turned in. I can ask
Debbie if she is in pain, and she will shake her head yes. When I ask where, Debbie
will shrug her shoulders. She does not know where the pain is, but Debbie knows she
is in pain. This is one part of the brain that is injured. Changes are occurring in this
area because not until the last month, Debbie did not say or express any pain. Is this
a good thing or bad thing? I am not a doctor, I just know this is different. There is no
way I can put on any braces at this point. And I cannot just leave Debbie lying in her
bed in knots, drawn, and jumping. This is also a first. So I get into Debbie’s narrow
hospital bed, on my side, which is the only way I fit. This is good because Debbie can
put her legs over mine and gravity stretches her muscles. As the meds start to take
affect, I can feel Debbie’s feet go limp. Five minutes later her legs go limp. As I hold
Debbie in the dark and pay attention, Debbie’s whole body relaxes and even her
tongue and right hand stop jerking. The fear or trick is not to suppress Debbie’s
breathing or swallowing. By now it is 4:30 am, and I think Debbie is a sleep, so I put on
her braces. At 5 am, Debbie quits breathing and wakes up. This is a normal thing
when Debbie potties in her pants. So we have to start all over again, but after I get
Debbie changed, I give up on the braces. I just get in bed with Debbie. This is the
only way I am going to get even an hour of sleep. I napped and held on to Debbie and
held her in arms. I think she jumped the entire time. When the sun came in the
window, we got up and started another day.
This morning Debbie is with us first thing. Once in her chair, we went into kitchen.
Debbie looked out the window for 2 hours. She was calm and content. I kissed her on
the forehead and as I stood back up, Debbie put her lips together and blew a kiss.
Debbie is really with us this morning. When I put Chap Stick on her lips, Debbie pulled
her hand out from under the blanket on her lap and punched me twice in the
stomach. I guess Debbie does not want Chap Stick on her lips. Is that not great!
DEBBIE is making a DECESSION and expressing that IDEA. I am so lucky to have this
time with Debbie.
It is 11:30 am; Debbie appears to be getting tired. Today is a sunny Carolina blue
day, but the wind is blowing 20 mph so it is extra cold. I believe it is a 35 degree wind
chill. I laid Debbie down on tilt table mat and covered her with 3 blankets. Also I put a
dry wash cloth over her eyes. By her breathing I can tell she is resting, but not
sleeping. I am lying in the floor, as not to bother her, catching up on some notes. The
silence is one of the hardest parts of this. I have not found a way to make this laptop
talk to me. At least I have not lost my sense of humor.
About 1 pm I got Debbie back up in her chair and ready for lunch. Deddie is extra on
this morning. We toke some special time to do a facial, this really relaxed Debbie.
Often she

February 25, 2006
Jerrall-
Debbie slept okay last night, just not long enough. This was only the second night to
have the pulse/oxygen sensor. At 2 am it went to87 and I gave Debbie some oxygen. It
is hard to take notes when Debbie requires 24/7. It will get better
Maybe Amber can tell you about bowling.

February 23, 2006
Jerrall-
This will be the only post of its kind!!! I hope. On April 4, 2003 Debbie didn’t have a
choice she paid the ultimate price, as of today she is paralyzed on her left side, can’t
talk, can’t walk, and can’t even let us know if her air way is blocked. But still Debbie will
give you a smile or a hand shake with out question. When PT tells her to stand up out
of that wheelchair she still tries. When OT asks Debbie to move her left thumb, some
how she does. This will is what will she her thru. Debbie doesn’t know we have given
up our house at the lake, the sail boats, the pleasure boats, car, and truck. Any thing
we every owned or worked for is gone. This is just material things that can be replaced
but our life time dreams, like seeing our grandkids play volleyball or get married seem
so far a way. By choice I have decided to be with Debbie until the end now I know what
is the most important to me. And with all this loose it can’t bring Debbie back. I live on
faith every day and take one day at a time. But today for the first time I have to go get
Debbie’s medical records and fax them to developmental disabled agency. I called
today and they said they have not received records since Nov 05. I don’t know what
they can do but I need to have papers in order in case some thing happens to me.
Debbie left home that morning and never dreamed she wouldn’t be coming home, no
one every knows. If there is some one in your life, call them right now and let them how
you feel. I have never had any help; it is too big of a job for any agency. They have
always wanted to put Debbie in a nursing home. In the beginning every thing was ok
but with time I have went from a 36 waist to a 33. I have lost over 35 lbs and never
want Amber to face this alone. I know when they ask me want I want I will be at a lose
for words. I don’t want any thing but to be left alone with what time we have let. Today
is a day that has to happen but it is a felling I hope no one has to experience.

9:30 pm Debbie’s right hand has been jerking in the chair since 7:30 pm. At 9:30 pm
she laid on the mat, I worked on her leg muscles. Gave her 2 Elivil, 10 cc benadryl,
whole diazepam. Saliva came out of her mouth during the transfer, but dry when
suctioned has not went number 1 yet. Laying down she has less movement in her
right hand and legs out. Since 7 pm oxygen 96-97 and pulse mid 80’s. 9:45 pm
bother legs are loose, sight tear running down right check. Left foot puffy but not as
bad as usual. She looked down at me and pulled on her legs, I waved my hand and
said hey, she in return gave me a big smile. It has to feel great having her legs moving
just like she was walking 3 miles. When this is over I will have no regrets. The last 3
years I would not trade for anything. At 10 pm she went number one, while I was
working her legs. Her right hand had calmed down even more when I changed her. I
checked her bottom. Tonight is going to be a good night.
She went 6 days on antibiotic, with no bowel movement. Then one day later with
magnesium citrus, increased water, increased softener, and less fiber, finally she went
on Monday. Still increased water and softener, less fiber went again on Wednesday
night 2 days later. To my surprise with some increased 1 night later on Thursday able
to go again. Maybe with food type change we have found new water and fiber,
softener level. A doctor could over mediate thinking a tremor is why she is jerking or
jumping when really it is only because that is her only way to tell use something is
wrong. #2 or shirt to tight or in pain, this is why I continue to not trust others to stay
with Debbie because if you are not with hr how can you read or help her. We are not
in maintenance. At 12:12 am she is finished with her shower. All of her braces are
on. Pulse/oxygen 99/74. She is very calm and no tongue movement.

February 22, 2006
Amber-
Mom may have had a hard night, but she was calm and relaxed once she was up in
her chair. I enjoyed spending this morning with her. 10:30 am she practiced her
stilling balance with a step under her feet. It went very well and she kept her right arm
out on her own. She rested her right hand on her knee while keeping her head up and
her body in a neutral position. Once she lay down she let me stretch her neck and let
her right arm lay out straight. Once I let go of her arm, she continued to keep it
stretched out.
Jerrall-
Last night was like all nights, after bath it took a little time and suction to get to sleep.
What was different was different Debbie woke up 3:30 am. I don’t know if Debbie had
a bad dream or pain, all I know is I had to take all of Debbie’s braces off because of
the excessive tone. At 3 am Debbie was ok when I changed her pants. At 4 am Debbie
is still awake and jumping so I gave her prn ¼ koloapin and whole diasapam. Also I
tried some thing new I put an oxygen cuff on Debbie and she calmed down like never
before. Debbie went right to sleep a like a secure sleep. I checked Debbie often every
thing was fine with no braces on. At 7 am the sun started to come in the window and I
looked over and Debbie was pulling the skin off her lips. Debbie was calm just trying to
work on her dry mouth with her right hand. I asked are you ok she nodded and
whispered yes I said good morning and Debbie just smiled. I took off oxygen cuff and
started to clean her mouth. One hour later Debbie is ready to start the day.
A respiratory nurse came this morning to check on Debbie. I told him the calming
affect oxygen had on Debbie this morning except for the dry mouth. He said he had a
humidifier in his truck for Debbie. This is was good to be true. WE and He said
Debbie needed a better pulse/oxy and would call his office. With in a hour after he left
he called and said at noon tomorrow he was bring an ER type Pulse/Oxygen sensor
and it would record high and low readings.
Today Debbie has been extra calm. But no therapy today so does it count. You bet it
does I am the one that is here 24/7 and I will take every minute Debbie can not be
jumping. Tonight after one and a half hours of work on the mat with Debbie’s leg’s I
checked and she is ready for another #2. Debbie is going crazy in her wheelchair but
I do know how to fix this.
INTERESTING DAY      met new people

February 21, 2006
Jerrall-
Debbie slept well last night just long enough. Debbie held her potty all night 3rd night
in a roll. Debbie woke up 6 am and wouldn’t go back to sleep. So we started the day
stretching arm and legs. With stretches it is a lot easier to get Debbie into her
wheelchair and not trying to push herself out with her leg. The nurse called today to
follow up about Debbie’s needs. She didn’t have to do this it’s just reminds me how
these people don’t do there job for just money. That is had to find in 2006.
Today way a big deal dealing with doctors and oxygen supply companies and
Insurance company hasn’t even come up yet. Brain doc says it not his problem and
primary care it nice and just let him know what I need. Hopefully tomorrow we can get
a better pulse/oxy. Debbie had a session with Brain PT today. They have been
working on sit to stand. This afternoon Debbie and I were able to go out side on patio
for almost an hour. Debbie was looking around every where like this was her first
outside. Tonight Debbie is a little jumpy. Not sure why I have tried every thing. Still a
good day.
Amber-
At 1:30 pm I walked up to mom in her chair, she smiled and shook my hand. Bryan,
the physical therapist, came at 2:10 pm and had a good session. Mom pushed her
right leg out when asked and then relaxed it when he asked her to stop and bend it.
She is gaining control of her leg muscle to relearn to stand again. They were
practicing sit to stand and trying to push up with her right arm but having her right
hand on the edge of the table. After 30 minutes she rushed her head down and
became upset. We found that it was because she needed to go potty.

Later on mom had a very relaxing shower. At the end of the shower she started to
have a saliva problem. This turned into a huge saliva problem. She had a hard time
for about an hour in bed.

February 20, 2006
Jerrall-
Debbie slept well with what little time she was asleep. We got up at 8:30 am. Lately,
like every Monday morning, I ask Amber to be with Debbie while I lay back down.
When I got up at noon, a nurse was at the door. I do not know what the nurse was
thinking. I had not shaved, showered, or even combed my hair. I did not even know
she was coming.
The nurse was here to educate us on oxygen use. The first thing we learned is the
oxygen cylinders are weapons. They have to be lying down or in a rack so they
cannot fall over. Next thing we learned is that we need a better pulse/oxygen sensor
since Debbie’s fingers are so tight. When we are not sure of Debbie’s oxygen level,
using the oxygen will not hurt her. Not enough oxygen can cause Debbie to have more
cell loss. We went over medicines with the nurse and she said everything sounds
good. We talked about # 2 and she said that it may take Debbie some time to adjust
to the new formula of tube fed.
Our OT Susanne came today and she said oxygen just treats the problem. I need to
talk to our primary care doctor about why Debbie’s oxygen level dropped. I also need
to talk to them about how to soften the consistency of # 2. I need to find a better way
to monitor oxygen level.
Tonight Debbie finally went #2. What a relief. I know she feels better. Today was an
educational day. I got 4 hours of straight sleep.
We are in the process of putting the message board (Guest Book) back on the
website. We had to take it down because of spam. Hopefully it will be up and running
soon.

February 19, 2006
Jerrall-
Last night the girls were out. The house was quiet, so Debbie and I watched Back to
the Future on TV. Our time got away from us. Before I knew it, it was 1 am. Debbie
and I got to bed extra late. Debbie went to sleep by the time I got all of her braces on.
Last night, Debbie did not need any oral suction. Debbie also did not go potty all
night. This morning Debbie was restless at sunrise, but went back to sleep several
times. I got Debbie out of bed at 9:30 am. We spent the morning in the kitchen. It
took two hours to brush her teeth and wash Debbie’s face. Krystal came into the
kitchen at 11 am and said, “Mom your mouth looks great! How long did it take Dad?”
At least once a week, we peel Debbie’s face (a woman’s thing to do), floss, and do
gums. Debbie sits still and appears to really enjoy almost like a trip to the spa. I laid
Debbie on tilt table mat and Krystal finished her face with moisturizer. Every Sunday
morning, I cook Krystal breakfast. I grill a rib eye and cut in little pieces, scramble
eggs, and mash chili beans. We put it all together on a flour tortilla with cheese
sauce. Krystal will be away at college before long. How will I know it is Sunday?
This afternoon Debbie has been a little wild. When I put a toothbrush or suction wand
her in her mouth, Debbie will grab it with her right hand. Debbie has been really mad
at me since 4 pm. On the first of February, her tube feed formula was discontinued.
The new brand has had Debbie constipated for 5 days. I gave her Magnesium Citrate
and as soon as I did, Debbie was jerking and kicking. At 5:30 pm, we tried to use the
bathroom with no luck. At 6 pm, I fed Debbie in her bed we will get back up at 7 pm.
Before bed, we will try again.
This has been a long day. When nobody talks to you and you see them in need of
help and there is nothing you can do, it makes the day longer. Silence is the worst
thing about this whole thing. I should not complain. I cannot even begin to think what
it is like in Debbie’s shoes.
I got Debbie up and we came into living room to watch a little TV. It seems to relax
Debbie, but not tonight. I put my hand on her hand rest and Debbie grabbed it and
squeezed it to hard. I dare not say anything. I cannot tell what Debbie is thinking, but
it has to be some thing about #2.
It is 9 pm. I am going to lay Debbie on mat and work her leg like she did our girls when
they were young. Anything is better than just sitting in that wheelchair and jumping.
Amber got home 9:45 pm, and we gave Debbie a bath. A great thing happened before
the bath. I put Debbie on commode, and she went potty on her own. This does not
happen often. We got Debbie to bed by 11:30 pm, but she did not want or could not
go to sleep. It took 2 hours to get Debbie to sleep. Every 15 minutes, Debbie needed
suction. Finally, Debbie got control of her swallowing, and then she could go to sleep.
During the night, Debbie did not need suction. Today was a long hard day.

February 18, 2006
Jerrall-
Debbie slept good last night without any suction. At 5 am, I cleaned the roof of her
mouth with a tooth brush. Her cold must be over. Debbie has been on so many days
in a row, she is taking today off I guess. It is 12 noon and Debbie is still asleep. We
gave her meds and food, via peg tube, in bed while she slept. Debbie sleeps on an air
bed, so she does not have to be rotated. When she eats, I raise the head of her bed
extra. What a week this has been. We all need to sleep in, but I have to stay a wake
to watch Debbie’s breathing pattern. Yesterday, they delivered the oxygen tank for
emergency, but no alarm type oxygen sensor. The lady said insurance figures if
someone needs an alarm oxygen sensor, they need to be in the hospital. I am glad I
bought my own sensor, but it has no alarm. I need to go check on eBay today. Today
Debbie got up 1:30 pm. Debbie worked on standing frame this afternoon. Today has
been a slow day or day of rest.

Amber-
Mom had a wonderful day yesterday, and not to our surprise she needs today to rest.
It is 1 pm, and she is still sleeping. When traumatic brain injury survivors begin to do
things, their energy takes a while to build back up. They used to tell us when she was
learning to blink, that it is like us trying to run a mile. After we run, we are exhausted.
After a few blinks she will need to rest. Strength and endurance take baby steps with
this type of recovery. Now that we have experienced this more, we tend to not stress
too much when she sleeps the next day. When we all started on this journey, we would
hold on to each moment she was on and did not want to let go. We feared that we
would never see it again. Sometimes when she would be extremely weak the next
morning, we would feel like we lost her or that she was not going to make it. You go
through all kinds of feelings and emotions. They told us that each time she comes on it
will stay longer and longer until one day when it stays on forever. Each time feels like
it is the most on she has ever been, and it is the best feeling in the world. It is 1:15
pm, and Mom is ready to get up. You may not think about this in a day to day setting,
but to hold her hand and sense the life in her is such an uplifting feeling. To see her
eyes look so clear or when she holds her head up on her own. These small
accomplishments are the greatest mountain top experiences we have that God has
given to us. She is getting her second chance, and so many new things lay ahead for
her and us.

February 17, 2006
Jerrall-
Debbie slept good last night without needing her throat suctioned until 4 am. Between
suctioning and changing her pants, I managed to wake her up. Debbie was still tired,
so I got into her narrow hospital bed. I was hoping she would go back to sleep. Every
time I would try to get up, Debbie would wake up. At the end of all of this, I woke up on
her right side of the bed. This is a first. I finally got Debbie up in her wheelchair
around 9 am. She can still rest, but she will be in a more up right position. Amber
worked with Debbie while I took a little time off. I have not been out in the real world
very much in the last 34 months. It is amazing how much everything has changed.
New roads exist and there are a lot of people. Gas is $2.30 a gallon. It took over 5
hours to just get 4 new tires for the truck. I feel like my world is stuck in time, and
everything is changing in the real world. I remember before Debbie’s accident we
would watch CNN, the stock market, read the newspaper, and keep up with the local
news. After 4/4/03, I learned what was really important to me. I never saw the Gulf
War. I never saw or knew about the tsunami or Hurricane Katrina in New Orleans. Just
since September of 2005, Debbie has started breathing through her nose, and I know
her vital signs are stable. I am trying to step back from the tree, and let others do
there specialties, but it is hard to adjust to this different world that I find myself in.
When I saw Debbie tonight, both of her pupils were almost the same size and she was
extra on [wild]. Amber said Debbie was doing her flash cards in a real low voice,
instead of just with her lips. I looked at Debbie and I noticed she had a different look
on her face. She was staring at me. I changed my face expression from “the look you
have when a 2 hour job takes 4 hours” and tried to smile or put on my happy face.
The look on Debbie’s face changed to a glow and she gave me a small smile or grin.
Debbie reaches out for my arm letting me know she is inside and has not quit trying. It
makes me think about how far Debbie has come, and how important it is for me not to
get upset in front of Debbie.

Amber-
Today was a spectacular day. At 2 pm, Mom and I did a speech session that turned
out to be fantastic. I show her flash cards to have her say the words. She usually
mouths the word or nods her head; I then repeat the word out loud for her. This time
she used both sides of her mouth, both lips, and her voice. She said the flash cards;
cap, boots, shirt, and mitten. She was very clear and she took deep breaths to use
her voice. We did 9 cards in all. The first 2 she mouthed, 3-6 she spoke out loud, 7-9
she mouthed with a bit of a whisper. This is her first time since the wreck to have a
voice like this. These 4 words were not in a whisper, anyone could have understood
her.
After some time, she began to point and say “I want.” She was pulling the cover off of
her and touching her leg. I found that she meant she needed to potty. We tried the
potty chair, but she was not able to. She was on the potty chair by her mat, she
started to lean over. She started to reach out for the pads. I asked if she wanted to lie
down on the mat, and she shook her head yes. She was communicating with me every
step of the way.
She was able to go after lying on the mat. She remained on and communicated in
various ways for a few hours. Dad was at the store and had called us. I held the
phone up to Mom’s ear, and she was using her breath to try and talk to him. You
could hear her trying to be loud and clear as her breath changed pitches. If Dad
asked a yes or no question, I could see her shake her head in response. This
happens from time to time. It is wonderful to see each time.

February 16, 2006
Jerrall-
Today started early for me at 12:30 am. Debbie had only been asleep a little over an
hour, and she needed her air way cleared. This went on all night long. I know this is
only a temporary thing. Debbie slept in until 9:30 am, and even though it is good for
her, it is not Debbie’s normal pattern. At 10 am, Amber said I do not I get out of the
house much that I should go to lunch with Mr. Callahan, and she would do therapy
today. So I took some time out until 3 pm. It was good, yet different. Today it was
almost 70 degrees and a sunny, beautiful day. The birds are everywhere, and people
jogging and walking. You can tell spring is in the air, and right around the corner. For
the last two springs I have been inside with Debbie’s recovery and have not noticed
the change in season, even winter. Everywhere I looked it reminded me of how much I
miss Debbie. I feel better taking Debbie with me no matter how difficult it is. When we
are together, I think how lucky I am, not what I have lost.
When I got back home, the physical therapist had just left. Debbie was resting on mat,
and she was so calm. Her tongue was not even moving. Amber said it was a great
session. Debbie was trying to stand on her own or at least to hold herself up. I could
tell Debbie was extra on because she reached out and grabbed my forearm. Not until
a month ago, Debbie never reached out to express emotion. It is now 9 pm, Debbie is
extra on and has excessive tone. Whatever Amber did today, I wish I could do tonight.
Debbie just had her relaxing medicines plus an extra disapam, and she is still jumping.

February 15, 2006
Jerrall-
Debbie went to sleep at 12:30 am. I could tell by her breathing pattern. For over an
hour, she would need her throat suctioned and her mouth cleaned every 5 minutes.
By 2 am, I felt like I could go to sleep for a little while with one ear open. Every thirty
minutes, all night long, she would need her air way cleared with oral suction. I was not
waking her up, but she was not in a good or deep sleep either. This morning at
sunrise, about 7 am, I checked her mouth and there was a ball of secretions the size of
a marble. Some how I did not hear her cough it up. I am so glad I was checking often.
Debbie held her potty all night; this is a first. Amber got home at 9 am and together we
got Debbie up in her wheelchair. Debbie was not ready to get up, but with her saliva
drainage, it was best not to lie in bed and have the secretions collect in her lungs. At
10:30 am, she was not sitting in her chair very well and was very tired. I laid her down
on the mat, covered her with 3 blankets, and put a dry wash cloth over her eyes. I can
not tell if she is asleep, but she is not moving or kicking at all. Debbie is never tired
during the day.   I can tell she is not feeling good. She needs to rest. At 9 am, her
oxygen was at 97 % and her pulse was 87, with no temperature. She has had a good
day, she even watched a movie with Krystal. Some suction required.

Amber-
At 10 pm we practiced sitting balance on the mat. She did a great job. We practiced
keeping her right arm out for 1 minute straight. Her head was held high. When she
laid down, she pushed her right leg out straight while I pushed back on her foot with
pressure. This is to build her leg muscles up for standing. Good job Mom!

February 14, 2006
Jerrall-
After the Hospital ER experience last night and getting to sleep at 3 am, Debbie is tired
this morning. I went to get her up and she was so warm and comfortable I could not.
So I raised the head of her bed and let her sleep in. I just gave her meds and formula
in bed and then I went back to sleep in my bed beside Debbie. I held her arm so I
would know if she moved. Susanne called at 10 am and said she would be at the
house at noon for therapy. I am so glad Susanne called this morning because it was
so hard to get back into routine. To think that one minute your body can have trouble
absorbing oxygen in your lungs. Your getting ct scans for pneumonia or blood clots in
your lungs and a few hours later you put on your street clothes and are told to go
home. It makes your realize how precious life is and how much we take it for granted.
All of this is to close to home. Susanne came at 12 noon for an OT session. Debbie
smiled at Susanne as if yesterday had never happened. She had a good session.
The physical therapist, Bryan came at 2 pm and had a good session. Debbie followed
commands well during sitting balance on the mat. She held her head up well.
She took a shower early before Amber left and Krystal helped. This gave me time to
cook a special Valentine dinner for Krystal and me. Tonight Debbie, Krystal, and I
watched a little TV before bedtime. Krystal helped me get her into bed at 10 pm, but
Debbie would not go to sleep until after midnight. Every time she would go to sleep, I
had to suction which would wake her up and this started the whole process again.
Surely she will be feeling better tomorrow.

February 13, 2006
Jerrall-
Last night was a good only had to do oral suction a few times. Debbie got up 8:30 am
which is great. Today started as a normal day and ended with a trip to the ER. Today
with one of Debbie’s saliva issues her oxygen saturation level dropped to the 80’s with
a pulse of 133. I called the doctor and she said go to ER and see what has
happened.
This morning I laid back down and Debbie worked with Amber. Around 11am Debbie
started a saliva issues with her right eye up under eye lid and left eye red like all of the
blood vessel burst. Amber said secretions stopped after about 1 hour. We checked
Debbie oxygen level and it was 90 so I asked Amber to call nurse and see if that was a
problem and set some perimeter. Amber started speech at 1:30 pm with Robin and
Debbie and then left for school around 2 pm. I finished speech with Robin and
everyone appeared happy with session. At 3 pm Susanne came and did a 1hour OT
session. Debbie was able to move her left thumb on command, had great sitting
balance and good use of left arm.
When Susanne first arrived she over heard me talking on the phone to the rehab
nurse about setting boundaries for Debbie’s pulse/oxygen level. So Susanne and I
talked in detail how Debbie looked good in color and fingernail beds. Susanne and I
both thought that the pulse/oxygen meter wasn’t working properly because of the
excessive tone in Debbie’s fingers. Susanne left at 4 pm and I laid Debbie down on
mat to rest. Then at 4:30 pm Dr. Hammond’s nurse called and said if Debbie’s oxygen
level is below 92 take her to ER and find out why and follow up with primary care doc
tomorrow. She said this is a primary care issue not rehab brain injury doctor issue.
She also said primary care doc needs to write prescription to get oxygen in our house
in case this happens again. WHAT A VERY LARGE CAN OF WORMS!
All along for years I have asked about Debbie’s saliva issue and needed a
pulse/sensor. Rehab doctor and then insurance said oxygen meter was not medical
needed equipment. So in December I bought my own pulse/oxygen sensor. I believe
this is a neurological issue when Debbie’s brain comes on it over loads and then saliva
issue starts. The best thing this does not happen as often. The worst thing has
Debbie suffered any more brain cell lose [hypoxia]. I need to look at yearly ct scans at
a different way.
So I asked Krystal to help me get the Jeep loaded so I can take Debbie to the ER.
Krystal wanted to come with us.
When we arrived the nurse took a reading of 82 oxygen/113 pulse. It didn’t take a
couple of minutes to come back to 100%. Right a way they got Debbie to the second
waiting area. There another nurse took a reading 77 oxygen/118 pulse. Then I found
myself lifting Debbie up and putting her on a ER table.
The nurse helped get Debbie undressed and all of the sensors, monitors connected
and an oxygen supply in Debbie’s nose. Debbie’s oxygen level came back up 95%
right away.
With all this happening Debbie started jerking and kicking so another nurse came to
help hold Debbie down. At this point they inserted a craftier. Now Debbie is really
upset. Krystal, Amber and I stayed with Debbie the whole time. After the nurses left
Debbie alone we were able to calm Debbie down.
First the doc wanted a chest x-ray to rule out pneumonia. This came back negative.
Next the doc wanted a chest ct scan to rule out a blood clot in lungs. This came back
negative. Debbie had no temperature, and all vitals had been stable for 6 hours. The
doctor came in and said we could go home. He thinks it was just a mucus plug
blocking air way. Debbie had not cough since we had been there but I did not want to
say anything. He said come back if it happens again. Regular doctors don’t
understand brain injury people. I think we will get the oxygen at home and save
Debbie the trip. It is hard to say because at home you can’t do a ct scan. HARD DAY
We got home at 1:30am and got Debbie to bed with her normal meds. It is so good to
be home. I went on to sleep and Amber said Debbie stayed awake until 3 am. She
wanted to try to talk. At 4am, I got up and changed Debbie’s diaper #1. Debbie never
woke up. TODAY WAS A VERY HARD DAY.

February 12, 2006
Jerrall-
Debbie slept great last night, no coughing or suction needed. It was late when Debbie
went to sleep and with in 10 minutes. This morning Debbie woke up at 8:30am, calm,
mouth great, and had very little tone. This morning has been good. It is 1 pm and I
am going to lay Debbie down on mat and trim and file her toe nails. I don’t know why
this is my job but the girls don’t do it. If Debbie is wearing her tennis shoes and Debbie’
s nails are to long it will cause pain and Debbie will start jumping. I will let you know of
Debbie gets mad and starts hitting me. LOL. It only took 30 minuets to do right toes.
Debbie took that great so now she probably needs a brake. Debbie is lying on tilt
table mat so calm with no extra meds. I put Debbie’s brace on her left hand it seems to
help fingers to relax. I put a tennis ball in Debbie’s right hand; I am in the 10 feet from
Debbie just letting her rest her right hand is perfectly still. Just as I typed that last line I
looked over to Debbie and she was rubbing her lips with her right and then right hand
back down perfectly calm. I wish PT, OT, and speech could see this. They tell me I do
too much for Debbie, but by the amount of writing I do she has a lot of down time. Also
I am not around many people. I have learned to live in a silent world when Debbie
wants or needs something she lets me know with a point, jerk, and sometimes just a
cough or shallow. The hardest to figure out is when she gives me one of those looks
like my parents would give me in church.
Debbie had a good rest of the day but at 7:30pm the saliva issue started. Debbie was
more a where of her surrounds but brain was over loaded. I don’t know but that is what
it seemed like. Years ago when I would take to ER docs would say they don’t know. I
put pulse/oxygen on Debbie’s finger and it read oxygen 70 and pulse was 137. But
that is not right. When Debbie has trouble breathing tremors start in right hand and
excessive tone in left fingers so out of ten tries can only get one reading. Color is
good in face and finger nails. Its 10:30pm Debbie is 96 oxygen/80 pulse and extra on.
It is like when Debbie came on she had an over load and figured out how to adjust. It
is time for bed to be up and ready for speech and OT tomorrow. We have waited for
Debbie to be this on for days I think bed time meds will have to wait. Hope Debbie is
on again tomorrow when she wakes up.   TODAY IS A GOOD DAY!!!

February 11, 2006
Jerrall-
Today is cold, cloudy, and rainy. Debbie went to sleep last night at 12:30am and woke
up at 8am. Debbie still had to have her mouth cleaned a few times but it is getting
better. For the forth night in a row Debbie held her potty until 5am. As time goes by
things get more back to normal slowly but surely. Debbie has been extra calm all day
even with out extra meds. Debbie did really good holding her head up while on
standing frame Amber did speech with Debbie and said everything went great. I slept
almost 4 hours today. The girls have moped floors, finish the laundry and cleaned all
day its 7pm they need to stop soon so they won’t be late tonight. It is so hard to do
everything needed and there are three of us I wonder how anyone can do this alone.
It 12:45am and I just got Debbie to bed and her braces on. Hopefully she will go to
sleep before long. Debbie’s mouth is good no drainage but she doesn’t look at all
tired. Amber and Krystal are gone and the house is so empty. Weekends are the
hardest. I am going senile not hearing any voices. When Debbie talks to me again
she will say Jerrall quite babbling. Debbie hasn’t smiled or made gestures today but at
this point Debbie can be a where but just doesn’t want to be bothered. I would say just
an ok day. Calm and no oral suction needed.

February 10, 2006
Jerrall-
I am not a hero. I cannot talk about the man that hurt Debbie. When Debbie is lying
on her mat paralyzed and in need of having her head propped up in order to keep her
from suffocating, only then does the reality of this tragedy hit to close to home. For
the last three days when I come into the room, kneel down by Debbie’s wheelchair, and
say hey she reaches out with her right hand and arm to give me a hug or a signal.
She wants to get out of that wheelchair. Little things like this let me know Debbie is
trapped in her own body. This was a hard day.
Debbie slept well last night with no suction needed. This morning started at 5 am. She
is calm this morning, but appears tired. Susanne, the occupational therapist, was sick
and did not come today. With Debbie not feeling good, it is for the best. Today Gina
came and did foil highlights in Debbie’s hair. Debbie held her head up the whole time.
Even Gina commented about how much stronger she is getting. At 5 pm Debbie and I
watched Jumanji on DVD.   Debbie did not take her eyes off of the TV. It is 7:30 pm,
time for some mat work on her legs. Over all Debbie is not as tight tonight as she has
been in the last week. At 9 pm we are back up the Mask is on TV. Let’s see if Debbie
will be interested. Debbie’s mouth looked dry. I gave her 2 pieces of ice, and she
chewed them up and swallowed.

February 9, 2006
Jerrall-
Last night Debbie only coughed twice and needed oral suction once. Debbie slept in
and didn’t wake up until 9 am. Debbie hasn’t been feeling good for the last two days.
Today Debbie has been a lot calmer with out extra meds.

Amber-
Physical therapy went well; he said Debbie did the best sitting balance yet. When the
therapist sat on her right side, Mom began to lean onto his shoulder. I think she is
used to Dad being there and she can rest on his shoulder. The therapist changed to
sit on her left side and she did not lean anymore. Most of the time, she held her
balance without being told which way to lean. She controlled her movement well. She
was holding her head up great. If she ever lowered it, she was able to bring it back up
on her own. When the therapist walked into the living room to say hi to Mom, she was
holding her head up and straight on her own. She had her head rest off and looked
up and down, as if to show off her neck control.

February 8, 2006
Jerrall-
Last night Debbie coughed in her sleep several times. When I checked her throat with
the suction machine, nothing was there. A lot of people had colds or sinus problems
last week. Maybe it is Debbie’s turn. Last night at the monthly TBI meeting, Debbie
held her potty until we got home and during the night until 4:30 am. Her bladder
muscle has definitely gotten stronger. Today after speech therapy with Robin, Debbie
was holding her right hand still and calm. Robin said it takes all of her concentration to
do this right now. When someone asks Debbie to do a task, the right hand’s tremor
increases.
Last night during the night Debbie was asleep, but I could tell her tone was increasing.
The more Debbie would cough the tighter her muscles became. At lunch, I gave her a
half extra of kolonpin which only calmed her for a couple of hours. At 6 pm, I gave
Debbie an extra diazepam which only lasted a half hour. The is the hardest part of all
of this is seeing Debbie jump, jerk, and have muscle spasms while knowing meds can
stop the jumping any day, but they put Debbie in a coma state. Today is the first day
to jump all day in 3 weeks. It was a hard day. Tonight both girls helped with shower.
Krystal, during shower, asked me jokingly why it took so long for me to think about
raising in Debbie’s bathroom (33months). Once Debbie went number two, she was
jumping all over again. Finally, Debbie is already for bed and asleep for the
night.

February 7, 2006
Jerrall-
Last night was a good night for Debbie, no suction needed. Since meds have been
reduced, Debbie’s repertory system gets stronger every day. Meds were reduced on
12/06/05, which wasn’t that long ago. I no longer wonder if Debbie will live through the
night. From this point, I know recovery can occur. No therapy for today because
Debbie has her 6 month dentist appointment. Dr. Waddell has been working since the
accident. Debbie has healthy teeth, so far just routine cleaning. Dr. Waddell
commented on how Debbie’s tongue looked like a regular client. I asked Dr. Waddell
when can we start paying for her services because Debbie is going to be with us for
years. Dr. Waddell said never. Has anyone every heard of any thing like this in this
day and time? Debbie has a friend that keeps her hair done just like before the
accident. Debbie has another friend that does her face and skin care. Gina and
Taylor tell me Debbie was a great client, but also a good friend. I worked 24/7 for 30
years, and I didn’t even know what kind of shampoo Debbie used or any of these
people before 4/4/03. It is amazing how many people Debbie’s life has touched. To
know we are not alone in this journey gives us the courage and strength to try to make
a difference in Debbie’s life.
Tonight is the first Tuesday of the month and Debbie has a second survivor’s support
group meeting. Debbie, Krystal, Amber and I arrived about 5 minutes late, but we got
settled in okay. Debbie was a little tight with extra tone as soon as we got out of the
Jeep, mainly because it was so cold. After about a half hour, Debbie noticed most of
the people there were not in wheelchairs. This may be over thought on my part, but
Debbie wanted out of her wheelchair. I picked her up and put her on a mat beside us
and put her pillow on the floor. Debbie put her right foot on the pillow and pressed into
it to hold her self up. Debbie set up during the meeting for over an hour mainly
unsupported on my part. When she got off balanced, I would touch her other side and
she would pull herself bask straight. This is the first time I have seen Debbie apply all
of her hours of therapy before. We were in CIR rehab gym and when Debbie got to
set on mat, like everyone else, she calmed down. When the meeting was over, we
went to the car. On our way, we talked to two of Debbie’s original nurse’s from 2003
when Debbie was a patient there. Debbie didn’t remember, but the Krystal, Amber,
and I will never forget them. It was great to see you again Terry and Chris. We got
home at 9:30 pm and Debbie was so tired she went right to sleep. One last note
tonight we met a girl 20 years old that has had a traumatic brain injury for three years.
Everyone is different, but she was walking and just had her peg tube removed
recently. Amber and Krystal got her phone number, and I am sure we will be seeing a
lot more of her.

February 6, 2006
Jerrall-
Debbie slept good last night with no oral suction needed. I did change her at 3 am, but
I did not wake her up. When she went to the bathroom at 6 am, she woke up before I
got to change her. I got her to go back to sleep until 8am. Debbie’s legs were extra
stiff this morning requiring a half hour of stretching. Amber got Debbie ready for
therapy this morning and I went back to sleep for a while. Weekends are getting
easier without suction, but I do not get to go to sleep until 4 am Sunday morning. I had
to give her tub feed and meds at 6 am. Last night I slept 4 hours straight, but with one
ear open. This was a great morning for Debbie, Amber said.

Amber-
The physical therapist, Bryan, said hello today and held out his hand. Mom reached
right out to shake his hand. They practiced sitting balance on the mat for 35 minutes.
Susanne, the occupation therapist, joined us to try doing prone. Prone is when we put
mom on her stomach over a wedge to support her middle torso. Her weight is on her
elbows, and her neck muscles are forced to hold up her head. She did this exercise
the best ever. Her neck was in midline, natural for the entire time. Her head never fell
to touch the mat. She lifted her head up a few times. She held strong for about 7
minutes. This is good amount of time for her to be able to keep her neck lifted. Both
of the therapists were proud and would like to do this exercise
again.


Jerrall-
I came into the room after the prone exercise was over. Susanne asked me if I could
put Debbie in shower chair so she could evaluate it. Friday, when Susanne comes
back, she wants to do therapy in the shower. Susanne wants Debbie to relearn how to
help with her personal care. I can build anything, but don’t know how to get Debbie to
make the next step of recovery. Susanne, I’m thankful our paths crossed.
After speech session, Debbie was really tired, so I laid her down on mat to rest. She
was unbelievable. Debbie pulled the cover over her head like she did before the
accident on 4/4/03.
Today has opened more doors or ideas than ever before.

February 5, 2006
Jerrall-
This morning we got up about 9:30 am. Debbie woke up at 7 am, but she was in no
hurry to get up. I would give anything to know what she was thinking. Finally, I said,
“Debbie, we got to get up so we can go to Gerald’s house,” and to my surprise Debbie
pulled her right foot out from under the covers. I ran around to the right side of the
bed before she tried to roll in the floor. Debbie was in her wheelchair and dressed by
10 am, but only after we tried on three different shirts. We went into kitchen to wash
her face, brush her hair and teeth, and had lunch. Debbie set back in her wheelchair
and rested while I got car ready. By now it was noon and we were ready to travel. It
always takes a couple of hours to get ready to go anywhere. That’s okay because all
we have is time. There seams to never be enough time though. On the way to Gerald
and Helen’s house, Debbie was looking everywhere. Debbie has been in the house
too long, but spring is quickly approaching. At Gerald’s house, Debbie was full of
smiles and even a few hand shakes. After about an hour, Debbie took a short nap
while leaning back in her special wheelchair. This has never happened before.
Debbie always feels so comfortable with Gerald and Helen. Helen, thank you so much
for inviting us. The food and conversation is what I miss most since Debbie’s
accident. Later in the evening, we all went over to Betty and Gene’s new house. Betty
and Gene are also good friends of ours. Betty appeared to be in good spirits since
her surgery last Monday. We headed home around 9 pm because Debbie will have a
big therapy day tomorrow.
Amber was home when we got there and Debbie appeared to have really missed her
this weekend. Amber usually hangs out with her friends on the weekends. By 10:30
pm, we got Debbie to bed which is earlier than usual. This was great.
This weekend went to fast which is also unusual. I can tell Debbie had a good time. I
wonder what tomorrow will bring.
NOTE: no oral suction needed all day or last night.

February 4, 2006
Jerrall-
Last night Debbie went to sleep at 1am and woke up at 7am. That is a great night.
Also no oral suction needed this means I got better sleep. This morning Debbie’s legs
are stiff so like always lay down in her bed her legs over mine and let gravity stretch
muscles. This morning it took 2 hours to get Debbie to relax. This morning was like
Sunday I cooked breakfast for Krystal. This was only possible because Amber worked
with Debbie until 3pm. After breakfast Amber said dad Debbie was ok I should take
advantage of this time and finish Debbie’s bathroom floor. It took 4 hours for two men
but floor is done and ready for a shower. Just in time today is shower day. At 3:30
Amber wanted to take a shower with Debbie before she left for the weekend. So we
went for it. Debbie was smiling during the whole shower. Amber asked what was on the
steel open grade floor that was sticking to her foot. I had to laugh and had to tell
Amber not to step on open grade of floor because the paint is still tacky. We all had a
laugh it is so good to have a roll in shower after 34 months. Today was a good day
again Debbie was with us all day. Tonight like the last week Debbie’s legs were extra
tight and puffy. I had to work with them for an hour and a half. This last week Debbie’s
left side has had more tone than usual. To night Krystal was home and she was
watching the DVD 50 first dates she had never seen it. I asked if it was ok if Debbie
watches it with her Krystal said great. Debbie watched every minute just like she had
never seen it before also. We know Debbie saw it last night with the same response.
The movie is vary close to the real thing about brain injury. Krystal helped me get
Debbie to bed about midnight but Debbie didn’t go to sleep until 2am. Debbie was
turning her head and smiling at Krystal all the way to the bedroom it doesn’t seam fair I
have to give Debbie meds to go to sleep not knowing if she will be with us when she
wakes up. I hope Debbie is on again tomorrow either way I going to take her to Gerald
and Helen house in the afternoon. Then we stopped by Betty and Gene’s house
before go home. The end to a great day.

February 3, 2006
Jerrall-
This has been a great day. Susanne, you made mine and Amber’s day. It is great to
have someone to talk that understands traumatic brain injuries. Susanne is Debbie’s
occupational therapist. I was so close to the tree I haven’t expected Debbie to move
her left hand or fingers for over a year. Then Susanne during therapy one day picked
up Debbie’s left hand and asked her to move her left thumb. I couldn’t believe it,
Debbie moved it. Susanne didn’t know Debbie hadn’t moved her thumb in over a year.
This made me think at this point in Debbie’s recovery what else she could be able to
do to increase Debbie’s quality of life. Every day I see change if only I take advantage
of this to make a deference. Some times I need to step back from the tree. I can’t tell
you what a difference you have made in Debbie’s life. Beside all of this Debbie got up
at 5am. This week has been like never before. The good is Debbie has been on every
day with little sleep and then tired at times from so much effort. Any change is great
but with this change comes pain. This is also new. We will take what cards are delft us
and make the most of it. Today has been great. Tonight Debbie and watched 50 first
dates she didn’t take her eyes off of it the hole movie. Its 11:30pm tomorrow will be
another day I can’t wait.    THANKS SUSANNE

February 2, 2006
Jerrall-
What a day today. This morning was hard for me to get up. I laid down with Debbie for
over an hour, letting gravity stretch out her leg over mine. By 9 am we both got up.
Debbie appeared ready for the day. I laid down for a while. Debbie, Amber and Bryan,
the physical therapist, worked together for a one hour session. Debbie did good
following commands and putting her arm out for help. Debbie was on the wild side
today. After therapy I laid Debbie down in her real bed and she rested for about an
hour. This is only the second time she has laid in her bed during the day. She looked
very tired and she took a short nap. A couple of times today she was tired. Tonight she
was really with us, but still tired. So at 10 pm we called it a day and went off to bed.
This has been a good long hard day. Tomorrow will be better.

February 1, 2006
Jerrall-
Today seams like several days in one. I feel like I have lost a week. Debbie was great
on Sunday. I worked on raising her bathroom floor for two hours, so it would be a roll in
shower. Monday I caught up on some sleep. Amber had classes today. Debbie had
speech with Robin and then we spent the rest of day together. On Monday night
Debbie did not want to go to sleep all night, even with extra meds. (She required a lot
of oral suction to keep airway clear.) This means Tuesday started early. When Amber
got up, I laid down. I did not wake up until 4 pm. I slept though physical therapy with
Bryan. Amber said Bryan had the best day ever with Debbie. Debbie was trying to
talk, turning her head, and following commands. This explains why Debbie didn’t want
to sleep last night. The more on (cognitive) she is, the more she doesn’t want to
sleep, either afraid or over stimulated. No one will ever know, I’m just glad she is at
home. Tuesday was even longer. Debbie did not want to go to sleep again. Her left
eye was red and her right eye was up under the eye lid. She required extra oral
suction throughout the night. But what was different Debbie took the cap off her
stomach peg tube. This is a first. The contents of her stomach were every where,
shirt, covers, sheets and Debbie is awake and acting as every thing is ok. By now it is
2 am with Amber helping clean everything up. I got in bed with Debbie and Amber gave
her extra meds. Amber said it was 3:30 before Debbie went to sleep. Some time early
morning I got in my own bed. Debbie was awake by 7am ready to go. By now it is today
Wednesday Amber has classes until 9:30 pm. Debbie has speech with Robin. Speech
went great, Robin said second best session yet. Robin said one of her re-sert goals
was Debbie paying more attention. I wonder if Debbie needs to try Ritalin again. By
now it is 8pm and Debbie is going strong. I still haven’t had time to work on bathroom
floor any more. Tonight is shower night old floor will have to do.